Mikey Stone first noticed a strange sensation in his left foot at age 26, which gradually progressed over three years to stiffness, muscle twitching, heavy legs, and a “peg leg” gait. Initially misattributed to overwork and COVID-19, his symptoms were finally diagnosed as ALS—a progressive, incurable neurological disease that destroys motor neurons—linked to a rare SLC1A2 gene mutation. Now 27, Stone shares his journey on social media to raise awareness and preserve his mobility, while reminding others that persistent muscle changes require professional medical evaluation rather than self-diagnosis.
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